Discovery Channel Special featuring TGA Operation
Ian -Transposition of the Great Arteries born February 1999
Riley – Transposition of the Great Arteries born 12-3-2005
Jordan – Transposition of the Great Arteries born 3-29-2007
Peyton – Transposition of the Great Arteries born 11-13-07
Jacqueline Rose – Transposition of the Great Arteries born 2/23/2008
Andrew – Transposition of the Great Arteries born 5-17-2008
Carson – Transposition of the Great Arteries born 1-18-2008
Connor – TGA, ASD, VSD, PS, PA born December 2007
Anthony – Transposition of the Great Arteries
Michael Toon “Toony” despite being born with a heart defect (tga) won a bronze medal in the 2004 Olympics.
The Care Behind the Kids
Look at You Now – By Mark O’Shea Successful Country Music Recording Artist and survivor of Tetralogy of Fallot
Some bonds cannot be understood…
Unless you have walked them before…
A path that I would not have chosen…
A future I just can’t ignore.
We’ve all watched our children intently…
Memorizing each line…
And let them leave our loving arms…
And prayed things would be fine.
We’ve paced the halls awaiting news…
And wondered just what lie in store…
We’ve felt our own heart’s racing as…
We walked through an ICU door…
We’ve seen the child we love so much…
Struggling to overcome…
The lines…the cords….the monitors…
No thoughts…no words…would come…
We’ve prayed for an improvement…
We’ve laid it in God’s hands..
We’ve cried…we’ve hoped…we’ve worried…
We’ve wondered of God’s plans.
We’ve learned just how a heart works…
Each valve and artery…
We’ve asked alot of questions…
We’ve faced each surgery.
And somewhere down this well worn path…
We’ve met more families…
Who know exactly what it means…
To live with this disease.
We’ve smiled at every triumph…
And shared in every sigh…
We’ve prayed for a child that struggles…
And each family that must say goodbye.
Some battles are fought with bullets…
And weapons made for war…
While these are fought in silence…
Behind a hospital door…
We’ve wondered what lies in our future…
We’ve been thankful for just one more day…
We’ve stopped and watched with tear-filled eyes…
Our children…as they play.
We’ve struggled with ounces and weight gain…
Why won’t my child just eat?
But heart mom’s …we’re a tough group…
We’ve learned how to face a defeat.
We’ve faced those moments…others do…
When life has got us stressed…
But it doesn’t take long to remember…
That we are richly blessed.
We’ve taken on a whole new role…
One we we wouldn’t exchange if we could…
We know that life is difficult…
We hold onto all that is good.
God chose each of us carefully…
I do believe he smiled…
Some bonds begin with strangers…
And just one special child.
Written by Stephanie Husted
The Same Scar
My dear child,
When you are older and look down at your chest,
You no doubt will notice you are different from the rest.
Don’t be afraid to let people know
For your mommy has a scar,too you see,
that just doesn’t show.
From the first time I held you and up until even a few minutes ago,
I had no idea, and still don’t, of the road you are meant to go.
The plans I dreamed while I waited for you-
which changed from hour to hour,
Have since been given and entrusted to a much higher power.
But please never fear or be afraid to cry
There may even be a day when you ask me ‘why’?
I will do my best to show no fear,
Because every minute is a gift-
just to have you near.
When I look at you,
and see your father’s face,
Its a gentle reminder that through persaverance,
we gain Grace.
my beautiful child,
my true gift of love,
Even though we know not the plan that is to be from Above,
With every day that you change a grow,
To become that person we have yet to know,
No matter where life takes you- near or far,
Our hearts and faith are kept safe,
For we share the same scar.
By Ashley Auzenne
The Day I Became A Heart Mother
One day my world came crashing down,
I’ll never be the same.
They told me that my baby was sick.
I thought, “Am I to blame”?
I don’t think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advice.
I will give my son any chance.
No matter what the price.
I will learn all that I need
To help my baby thrive.
I’ll even use that feeding tube.
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound.
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my baby’s bed.
I watch him sleep for quite a while.
I bend down and kiss his head.
I cry for the parents whose hearts have been broken.
I look to You wondering why?
Oh Lord, I just can’t know your ways….
no matter how I try.
And yet, I trust you hold his life,
and guide us through each day.
My mind says savor each moment he’s here,
but my heart begs, “PLEASE let him stay”!
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering, “Will he be alright?”,
to watching him reach out his hands.
With every smile my heart just melts,
despite life’s harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much.
I would face ANY trial.
That scar I trace with my finger
(It’s the door to his beautiful heart).
God must have known how much I’d love him
(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day…….
When I became a “Heart Mother”.
Mommy to Braeden HLHS post Fontan
Carepage name: babyhusted